Hard to believe that this month will be 5 months since Chads diagnosis!
Chads 1st cycle of chemo has finished-3 weeks off now until it all starts again. Blood levels have dropped, come back up, dropped again-and Chads having a blood transfusion tomorrow and im sure that will give him the pick-me-up he needs!
Chads been enjoying playing his Disney Infinity on the xbox recently. hes been buying alot of new characters. ”five more minutes Chad, then the xbox is going off” is now a common phrase. Mums trying to limit him to a couple of hours a day-Chad pushes this as far as he can!
Last week was brilliant, raising lots of awareness for brain tumours, and limiting the diagnosis time-after all, this is what has benefited Chad, and paved the way for his treatment. We have had lovely feedback from all over the UK, making some new friends along the way, meeting other families whose lives have been affected, sending our love and support to them, sharing stories, and all keeping determined to carrying on shouting about the biggest childhood cancer killer in the UK.
All our lovely friends and family are supportive as ever, and taking it upon themselves to bake, collect and organise to raise as much money for charities as possible!
Chad has decided this week that the carities he wants to support are CLIC Sargent (who helped mum, Dad, and Chad at the start, and throughout), The Brain Tumour Charity (who are tirelessly researching with very very little funding) , Heatsmart, (who are trying to raise awareness of the importance of early diagnosis) and Brainbow (a new rehabilitation service for children with brain tumours at Addenbrookes).”
Chad and mum are baking cookies-im sure they will go down a treat with a hot chocolate later!